Momz, there may be a silver lining to this: they have identified the problem. I hope a good neurosurgeon, maybe in conjunction with an osteopath can FIX the problem! It may mean a surgery and a lot of down-time, but I hope for you and your families' sake that it's correctable.

Lots of knowledgeable folks over in the spiney forum. You should get great support there. Keep us posted ONLY as you feel up to it.

We love you!
Anne