As I went through my drama of a month ago I often wondered at the lack of knowledge regarding Parkinsons by medical people. In my 12 years with the disease (9 medicated) there has been no in depth analogy by neurologists or GPs. One senior specialist mentioned just before I was released that there were no detailed kept records on my PD for them to review. It seems after the dx, it's.... take the pills with orange juice x times per day and I'll see you next year.

This Michael J Fox report is fantastic, and not before time. For me the crucial stuff I will be bitchy about, (if that word is too strong we can exchange it for disapointed) no audited report on my condition has ever been done. And it appears the U.S. has the same stagnant system. No wonder little progress has developed since Sinemet deployment more than 40 years ago. Thanks for posting. I still cannot get [eurl]www.michaeljfox.org[/url] on the web. Your posting of full text is invaluable. I have more puter drs arriving next week to disect and rebuild.

For me these are the standout points....................

All participating Parkinson’s Institute patients will be enrolled in the 23andMe Personal Genome Service™ and will provide a saliva sample for a comprehensive genome scan generating more than 580,000 data points per patient.

--Parkinson’s Institute patients will provide specific information and insights that will include their individual environmental exposures, family history, disease progression and treatment response.

--Patients’ risk factor and clinical data collected through the newly developed and validated web-based tools will then be merged with their genetic data to conduct research on Parkinson’s disease.

--New surveys will be developed and administered to the growing cohort of patients, generating new risk factor and clinical data for comparison with the existing genetic data.

This has got to be a quantum leap forward. All this in a week that saw Neurologix www.neurologix.net announce their recruitment plan for patients to assist in the Nurologix phase 11 Parkinson's trials happening in the second quarter or business.