Niki,

I'm really feeling for you and I'm so sorry that this has happened. It sounds as though you have fantastic care available to you and sympathetic to boot. I was treating with one neurologist who didn't work Fridays. I was flabbergasted when I disicovered that. It seems as though some docs want to limit their schedules. Needless to say, I stopped treating with him. I also suffer from no sleep and no laying down when my TN decides to fire off real bad. That is such a horrible feeling to be so tired yet not be able to sleep. And, I suspect I also have ON but I'm waiting to see my neuro to discuss that. Anyway, I just wanted to send you mega and boat loads of low pain wishes.
Take care, Ellena