Thread: Tysabri envy
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Old 05-17-2008, 04:20 PM
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Judy2 Judy2 is offline
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Judy2 Judy2 is offline
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Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
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Right on, Harry! You said it when you mentioned MS isn't just about relapses, especially after a number of years and it's progressed to the SPMS stage. There are no relapses but everyday is a struggle just to get up and dressed to carry on our "so called lives".......as you well know. Seems like some research should be going at this disease from a different perspective, but then what do I know other than living with it for 32 years.

(((((Barb)))) Many of us can relate to your frustration and questioning. We wouldn't be human if we didn't "vent" once-in-awhile. When I was first diagnosed, there weren't any DMD's, but when they came along I tried with no success. Horrible side effects with all of them. I have been taking LDN for around three years now with NO side effects and the neuro seems to think I've been fairly stable. Of course the damage is already done with wheels being my current feet!!! LOL!! Have you looked into this possibility? It's alot less expensive than the others too!

We're really good listeners, so vent away!!!! Take care.........
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.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
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"Thanks for this!" says:
barb02 (05-17-2008), SallyC (05-17-2008)