You are welcome.
Also know that steroids cause weak muscles! It is called steroid myopathy!
Part of the difficulty I am having in getting diagnosed is that I have a lot of pain. While you are weaning, you will reach a point where it will be painful. Weaning off sterods is akin to weaning of heroin in terms of physical pain (hence why some go to rehab for it, but the rest just stay on them).
My neuro finally just said well, my upper body must be MG, the lower steroid myopathy, and to me that makes about as much sense as when I was a waitress and I used to ask people who said they only wanted half a cup of coffee if they wanted the left or right half... I just don't think that is possible!
Why everyone wants to give steroids as the miracle drug - no idea when the long term damage can be so horrific.