At 44 I am also a Newbie in terms of my diagnosis and had almost forgotten about my toes cramping up a few years ago until you mentioned this in your posting. As I recollect over various ailments that I have encountered since my late twenties (e.g. dizziness, vertigo, poor circulation, intermittent palpitations, etc) I realize that my recent diagnosis just acknowledged that something had been wrong all these years and not just somatic complaints. It is only when I begun to have varying intensive headaches this year that my second Brain MRI revealed a Chiari Malformation, which was never interpreted on my MRI a few years ago. I am presently reading a book called "Conquer Chiari", which can be purchased from Amazon.com, which I have found to contain helpful information, especially for me at this confusing and emotionally trying time.