Hi to all!!!

I have an 18 y o son who is severly handicapped. We live everyday with all the above mentioned (title). He has been on a long list of seizure meds and we are now investigating the VNS for seizure control. Would be greatly interested in connecting with any and all who have valid info and or personal knowledge and experience with VNS. Also, I would be interested in comparing notes on any and all the above and below mentioned disorders that, at least for us, fall under the umbrella for the diagnosis of cerebral dysgenesis.

My sons conditions are severe seizures, CP, cortical visual impairment (CVI,CVD). He is non-abulatory, and non-verbal. He also has a Mickey button and thus receives all nutrition and meds via the tube.