Hello Pippa, and welcome to NeuroTalk.

I see that you've already found your way to our General Health & Rare Disorders Forum, but if there's anything else we can help you with, please let us know.

I'm however wondering if you may need to see a Neurologist after what you've described to us. Has this option been mentioned to you yet? Maybe it's something you could discuss with your GP. It certainly wouldn't hurt.