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Old 05-25-2008, 04:04 AM
Scots Kat Scots Kat is offline
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Join Date: Feb 2008
Posts: 175
15 yr Member
Scots Kat Scots Kat is offline
Member
 
Join Date: Feb 2008
Posts: 175
15 yr Member
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I think it is a very good idea to persue a diagnosis, even if your symptoms aren't too bad at the minute. That way if things do progress you've got some evidence. When I was first diagnosed the neurologist said I had a very mild case of generalised MG and it would probably be manageable with mestinon for the rest of my life, but that all changed! Even my original electromyography test showed only slight issues so the doctors weren't too concerned. I think if my blood tests had come back negative they might have thrown me out as a crazy!! Thankfully (I guess) my bloods showed the Musk antibodies so the diagnosis went through. When I was diagnosed they checked my Thymus and everything was fine, but I'm trying to convince my neurologist to double check it now that my symptoms have worsened so much.

All the best!! And keep in touch - it's nice to chat about things. It clears my head!
~Kathy
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