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Old 05-26-2008, 10:10 PM
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sheena sheena is offline
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Join Date: Feb 2008
Posts: 203
15 yr Member
sheena sheena is offline
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Join Date: Feb 2008
Posts: 203
15 yr Member
Default More hope for those on TY

Before going on Ty I was told I would never regain use of top of my left leg like before and would always have same prob there. Guess what - leg is almost back. I would say 95%! This is not something TY is supposed to do. But, it has happened to others and now even me w/all my prob. I think this sayes a lot for TY.

Yes, I am in an exacerbation - but I never came out of the 1st. Ty is not supposed to pull one out. TY is not supposed to do anything much for 1st 6 mos. But, it has on me. I can even touch my leg and have it fell almost like the other. All I have is very minor dif. This exacerbation is bad, but it is not as bad as it 1st came on. I can walk... and I could not w/1st. I do not think TY put me in this relapse. I was going into it before my 3rd infusion.

In ref to staying on TY and past sides.

I stayed on Ben for 1st 24 or less hrs this mo and had no sides. I even think I have found a reason for sides - the swelling... I had. I'm allergic to cheese. I usually don't have anything but swelling an itching of feet and hands and that is only when I eat tons. I think TY may have increased my allergic reaction. Hence, I ate no cheese last mo - took ben for only short time just in case and had NO SIDES.

My advise to those consideing TY

Just stay 100% away from anything you have ever had the most minor reaction to. Most do this anyway. I just love cheese. Based only on me so far -- if you do -- I think you will be fine. I never even considered this till it just occured to me one day.

I'm had antibody test - will get results this week. I'll have liver later this mo or maybe when I go to GP b/c I'm sick. I have feeling all will be fine. I am usually right with my feelings - so we will see.

I remain very pro TY!

Sorry for typos... I'm sick (fever and such) and not cking.
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Riverwild (05-27-2008), Victor H (05-27-2008)