Having gone through the first year rollar coaster ride of emotions, I guess the biggest thing I've lost is my illusions. The illusion that each day will be the same. The illusion of control. Kinda hard to keep it when you are faced with the unknown each day.

I've learned to laugh at myself more and to grab what I can from each day. As my hubby says "it's never boring since we don't know what we'll wake up to" I've had to leave my job recently because of my fatigue issues. I couldn't do that and take care of my home, my family, and myself.

I've learned to split large projects into small ones. Takes longer, but finally getting some stuff accomplished. That makes me feel better when I see the pieces finally coming together.

This disease is crazy, but luckily I'm already a little nuts. I find the adjustments I've had to make have turned out ok so far. Even though I've fought some of them since I'm a stubborn one.