Hi Marilyn~ Late at seeing this, but I understand what your'e saying. People think b/c my DS has had a kidney transplant, that he is cured. A transplant is a stall, so to speak, and one that we pray will last a long lifetime.
I think we, as parents of children w/illnesses, just have to continue to take one day at a time. I think that's all any ONE of us can do in our daily lives.
I'm glad Keith is doing well, (except for the allergies). He is an inspiration.