Hi Mandy and welcome to NeuroTalk!
So sorry to hear about what your son has been through. I hate to hear of anyone suffering with a medical condition but it always seems harder for me to hear about a little baby having to go through this stuff. Just doesn't seem fair.
As you can see there are a lot of people here eager to help you with suggestions and advice. I'm so glad you found NT and hope you get the help you're seeking.