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Member
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Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Member
Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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WELCOME ONE AND ALL.. dont just peak in.. come and tell us your story. WE CARE and know the struggle of being in "limbo"...For me its been 4 years and still no clear answers. BUT... I do have 2 great neuros, one is MS specialist. Even tho I was DX with benign MS, then had it taken back.. I like they are willing to monitor me and my symptoms. BUT man is it confusing and draining at times.
Hey hey BRAIN... glad you told your story. I dont think I ever heard it all, (or maybe just dont remember LOL)
What I appreciate is that YOU are here to welcome and encourage others who are in this struggle too.
So.. give me a pep talk as I will see my MS neuro Friday AM, the 1st day of my little vacation!! What a way to start my getaway weekend!!
The sleep apnea neuro wants me to see the MS doc to order an EMG of my legs. My arm/hand EMG was positive but he said my left arms was slightly worse than the right. AND its the RIGHT side I have more problems.
I have had buzzing, then electrical shocks that run down my legs, tingling that is increasing. The spasticity is daily. So he wants the MS doc to order an EMG for my legs.
Together they are still trying to figure out why I get these sudden "episodes" where my bp/HR suddenly shoots up, I get weak and eventually cannnot communicate nor remain alert.
I THINK its an autonomic dysfunction and so does my last Rheumy, HE also ruled out another mimic of MS.
AND.. both Rheumies I saw last year do not think I have Fibromyalgia either, tho the MS doc and his staff think so. What gives??
SEE?? Now I do not want a DX anymore. Found out at my age and while trying to change jobs DX could really hurt my career and insurance.
I am on the MEthocarbamol for muscle spasms in my back that now I think its related to the SPASTICITY which I have had in my legs every day.
My job still is a nightmare as this supervisor is once again "observing me" in front of my patients. I do have an interview tomorrow to do Hospice work. I wil try to get out of this place as soon as I can get another job.
So thanks Brain.. listen to your body andhope you take it easy... k?
As far as my little life...Stay tuned.... LOL
Jan
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