I assume that this forum stems from the Braintalk forums that used to be provided through MGH. I started posting online there back in 1996 and was a member for many years. I had been unable to find the MGH forums for the last few years and just today stumbled upon these Neurotalk groups.

I'm glad to be back and be a part of this type of community again. I had really been missing the Braintalk forums as I really benefitted from being a part of that community.

Regarding me...I have had generalized tardive dystonia for over 12 years. My dystonia affects mostly my left side, but I also have dystonic attacks/storms that look similar to seizures only I am conscious during them. The attacks happen in response to certain environmental triggers and with certain medications. Dystonia affects my ability to walk and I use a manual wheelchair to get around. I also have a service dog that I retired about a year or so ago. He is getting old and stays home now. I may get another dog eventually, but I am currently working on my doctoral dissertation so it is not a good time for training with a new dog.

I am getting a Ph.D. in both Neuroscience and Psychology. I study neurodegenerative diseases and movement disorders and I hope to study dystonia soon. My dissertation focuses on Huntington's disease.

I also have severe gastroparesis (stomach paralysis) that may or may not be related to the dystonia. Gastroparesis also is related to dopamine dysfunction so I feel that they are related. Because I can no longer eat due to the gastroparesis, I get my nutrition intravenously each night through a central catheter (PICC).

I am also Mommy to a soon to be three year old. He is the joy of my life and keeps me going each day. He is the center of my life.

Thanks for reading and I hope to meet some more friends here soon.
Peace, Jen