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Magnate
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Join Date: Jan 2008
Location: NW Ohio
Posts: 2,450
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Magnate
Join Date: Jan 2008
Location: NW Ohio
Posts: 2,450
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I'm with you, Nancy. while being sure what's wrong would be nice, living this moment means more. Peace right now is important, knowing or not.
I was getting too angry, too frustrated. I had to let it go. If they can ever tell me I have ms or not or if it's something else, that's cool. It's cool if they can't too.
Just help me when I ask, and I'm good.
Fortuantely, I finally found docs I can ask, and they will help. Ones I feel some level of confidance in. Because like you, I had lost that. After hearing enough BS, you wonder if any of them have a brain.
(I had an MRI, I know I have a brain, but I wondered about some of those guys)

And hey - very happy about your BAHA. That's very cool, and I hope it makes a big diff in your life.

Hurts - some of your story is a lot like mine. The migraines, the chronic daily h/a, the crushing fatigue. Are you on something for any of that? Mine started just prior to my tubal, but a lot of sx came on right after. I know surgery stresses the body and brings them on.
I also have pain from cold, sx from heat. Weird parasthesias.
I'm glad you like your neuro, but I wonder if he has you on any anti seizure meds? They may also help your headaches. They say seizures are not a sx of ms, but a few people with ms do have them. There may be something related, who knows...
Keep us posted though, okay?
Debbie - I know! Jackets or tank tops? Open the window or turn up the heat? Dh and the kids are supposed to open the pool tomorrow and I'm sitting here with a blanket over me!

But anyhoo... gonna be nice this weekend - what are ya doing? Come on over and I'll mix up some drinks. We can talk (about anything BUT ms and sx and meds and doctors ), float around and goof off.... Sound like fun?
Where the heck are those cabana boys? They'd better be working on their tans...
  
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Anybody who doesn't think a dog can smile has never dropped a piece of bacon.
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