Hello Daisy May,
Have you tried Lidocaine patches yet? I've read about them, and they seem to be used often for this type of pain. I would also suggest a consult with a pain consultant if your Rheumatologist agrees. Often they are trained to treat pain much better than a specialist, as the specialist is trained to diagnose, and not necessarily treat chronic pain. I'm sorry you're hurting. That's the best I can offer.

All the best,

Chris