Hello there...

I also have PPMS, recently diagnosed (Mar 08) but w/ long standing symptoms/issues (first neuro visit Jan 06). I have balance problems, dizziness, bladder problems etc but the thing that brought me to the neuro doctor first were problems with my left arm (tingling, burning, buzzing...weird stuff) then - cognitive issues just kind of all ganged up on me! Cognitive issues...including getting lost, sounding drunk, never having the right words to complete really compelling thoughts etc.

The MS specialist (who I expected would blow me off or say it was nothing but that I should increase my anti depressants and carry on) --- said --- I believe that you not only have MS, but that you have PPMS....and that you have marked brain atrophy which has increased quite alot in just a year. I was/am flabbergasted - I expected to be sent packing. It still seems unreal in many ways.

Anyway, I don't want this to get too long - I just want to offer you hope. I am active duty Air Force, still mobile, still able to exercise (but not run). My PPMS has not drastically affected my mobility - but every day I do the roll call to see if everything is still working as it should. I have cognitive issues but most of the time they are pretty darn funny....

I hope that you find peace with all these kind folks, they sure make our journey less lonely. Our experiences strengthen each other - we know that we are not alone.