Hi, Crwstar!

Welcome to NeuroTalk!
I'm sorry to learn of your persistent condition, it has to be maddening. We have a forum dedicated to headache of all kinds and you may be able to glean some understanding from the many fine folks who frequent it. Join in anywhere and feel free to post a new thread with your specific questions.
Headache:
http://neurotalk.psychcentral.com/forum32.html