NeuroTalk Support Groups - View Single Post

FaithS · 05-31-2008, 03:00 PM

Cheryl --

Just found this thread. I know. MS is fraught with losses. So sorry about some of yours -- the flying solo, the job stuff.

My MS losses include:

1. I've just recently lost my 3rd job in the 6 years since MS hit.
[a.]Apr. 2002 -- Ran out of FMLA time
[b.]Dec. 2003 -- Decided to close a licensed day care home, after my parents needed to find other care for their children following an absence during an MS flare. Didn't want to start over, when I knew it would likely have to happen again.
[c.]Human Resources, instead of sending FMLA forms, sent a letter telling me that I would not be returning to para-educator position in school. This was the 3rd time in my 4 years of working there that I'd had a flare that required FMLA time.

2. When I'm in a flare, another loss for me that is I become manic. The way I describe it is that I become someone that I am not. It is difficult for me, when I recover to know that I can be so much out of control of my thoughts and behavior. Most flares, for me, require hospitalization at a mental health facility. They usually occur once approx. every 10-12 months.

3. Financial losses. Had to refinance our home in 2003, due to excessive medical expenses. Has affected what jobs I am able to take, what income I am able to earn, etc.

4. Employablitity. Wondering if it is time to apply for disability. In a new job, I expect to have a flare that requires more time off than I am eligible for, prior to qualifying for FMLA again. It looks like I would likely bounce from one job to the next for the next 20 years if I would look for a new job. Have an appt with a disibility attorney next week.

~ Faith