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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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HiCy - meeting with Docs TOMORROW
Hi Everyone,
Just wanted to drop a note - in case anyone wanted to know 
I am currently in Baltimore....I will be meeting with the doctors at Johns Hopkins tomorrow (Monday). I will meet with the neuros, hematologists, and oncologists to discuss HiCy/Revimmune as a treatment option for me.
I am very nervous....but also very excited. Who'd have thought I'd ever go somewhere to beg someone to give me high dose chemotherapy! LOL
I'm exhausted - having traveled the red-eye from California last night. Oh, and I'm in the middle of a gnarly exacerbation and I traveled alone. I do not recommend this! Actually, I am in awe of all people who are able to travel and function disabled....I am not cut out for it. Gosh, they need to cure me! 
My nerves are flaring - in every which way - thankfully, I have tapered off of that ridiculously high dose of prednisone pills that I was one (did 5 days at 1000mg/day and 2 days at 500 and 2 at 250). I'm less of a wreck since they stopped yesterday. Wow. Staying away from those FOREVER. Bring on the IVSM ANYTIME!
Anyhow, I'm carefully, graciously, thankfully, and thoughtfully accepting any good positive thoughts that anyone would like to send to me.
Thanks,
~Keri
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