I was at a neuro doctor who was sitting across the room from me looking this way, looking that way at my brain x-ray. Then he exclaims ---oh, I got it upside down. He recommends immediate surgery and rushes me down the street. Go into that dudes examing room, and every wall (I'm not kidd'n) has films hanging on it. Like wall paper. He just laughs and says he wouldn't get all excited about it. He would'nt do surgery. This was the newer doctor in the practice. I think the senior doc and my original dude had a racket going on. Because without a surgery, there was no reason for all the test he did !
Then - its been in to see this doctor and that doctor. I have a whole cabinet of RX.
This is been going on for ..ah..seven years. Then yesterday, I flip on PBS TV and Alice Flaherty is talking about Geschwind syndrome. God - half the cure is in understanding it. Looking back I think this one doctor was on the path but I couldn't stand him. You've ever been to one who is so rude, you just can't go back?
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Originally Posted by Desinie
So I went and had an MRI of my brain with and without contrast on May 21st. This was the first MRI I had in about 8 years ( Just a bit of my background info: I've been on Copaxone that whole time. I was diagnosed in 1999, but had my first exacerbation back in 1992 which was misdiagnosed as Lyme Disease followed by a fairly long remission when I became pregnant). My neuro told me to call him a week after the MRI to get the results. So, I did and after 2 full days, he returned my call.
Even though I did get a CD of my MRI, of course, I couldn't really make much of it. Other than that I could see some lesions.
Anyhow, this is what my neuro said as to the results. The lesions I have are periventricular. When I asked him for a number amount of the lesions, he said, " Oh, I'd say it's a medium amount." ( Whatever that means  ) I asked him if there were any lesions on my brain stem. I thought there probably were and that was to blame for my ataxia and lack of balance. He told me there are no lesions on my brain stem or cerebellum. I was glad to hear that.
He said none of my lesions were enhancing, so therefore there's no inflammation. More good news, I guess there. He also told me he doesn't recommend any DMD change at this time. Because my last MRI of my brain was in 2000 it was not readily available to compare to this new one. He said sometimes some are kept in archives/medical records, but he didn't know if mine was. I asked him to mail me the radiologist report for my records, which he ( most likely his staff) is going to do.
I feel real rushed anytime I get to speak to my neuro. I think some of you can relate to that too. If this were the kinda response you got to your MRI results, what would you think? I know waiting on the radiology report should give me more complete answers.
Thanks in advance for your thoughts. I read this board just about everyday and feel like I know you all, even though I'm not as talkative as some. I feel a special bond to all of you!
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