Quote:
Originally Posted by NurseNancy
it's hard to say if your legs will give out or not. if i get too fatigued or too hot i feel like i could collapse. and i think i would if i didn't get off my feet.
why do you say 2 yrs? what's that marker about?
and, can i ask if you're on any DMD's?
what have your mri's said?
do your tx's help?
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I say a long two years, because I've heard the first two years after dx are the toughest, with often times the most frequent relapses, etc. It's only been six months since my dx and while I'm getting somewhat used to what my "standard" sx are, new ones still pop up every few weeks.
I am on Copaxone and have been since one month after dx. I've also taken IV steriods with a ten day taper in February. Now I'm doing the lower dose solumedrol for 6 months.
My MRIs show only a few small brain lesions, although the neuro thinks there must be some forming on my spine which my be affecting my legs. I recently discovered that the current MRI machines can only detect lesions of a certain size. New MRI machines are now able to detect much smaller lesions, but most places do not have these new machines yet.