Thread: RSD Symptoms
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Old 06-05-2008, 02:43 PM
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Join Date: Jul 2007
Location: California
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Quote:
Originally Posted by Coffeebean View Post
Hi all, I have been reading this board since I was diagnosed with RSD in May, 2007. I have had two ulnar nerve surgeries which resulted in RSD in my entire left limb. I have had most of the symptoms of pain, burning, bluish-red blotching, lots of swelling and now dystonia, which is really leaving my hand weak.

Anyway, I have a symptom that comes and goes depending on my activity and environment. When I get nervous or work hard on an exercise bicycle, my left hand will sweat like crazy. This happened again last night while I was watching a movie with my family. It was an adventure (nothing upsetting) but there was a build up in a scene and my left hand starting sweating so much I had to get a towel to clean up the moisture. It continued for a few minutes so I took a .5mg of Ativan to calm things down. That pill coupled with a changed environment (movie ended) stopped the sweating completely. The same thing happens with exercise, if I work hard on my bike, my left hand sweats like crazy yet I get nothing from the right.

I know I never had this problem before the RSD. So I wonder if this means I still have the RSD in my arm? I get so confused. I saw my hand surgeon last week and he said the RSD has resolved and what I now have is a damaged ulnar nerve. Two days later I see my neurologist and she said the sweating and hand stiffness is from the RSD and that it never totally resolves.

I am really confused. Does RSD flare and calm down or if the pain level calms down (sometimes) does that mean I don't have RSD?

Also, if I am just calmly sitting watching a movie and this terrible sweating starts up without me moving my arm (I have it propped on a pillow to help reduce the swelling) then does that mean the RSD is originating in my spine or brain and not in the peripheral nerves?

Any ideas?
I understand the confusion. I wastold by a physical therapist in Feb 2007 that she thought I had RSD and she told me to talk to my doc about it. It wasn't until after I saw my hand specialist that I was officially diagnosed with it in June-July 2007 and he said it was caused from the previous dr doing surgery wrong. I didn't even know what RSD was so I came home and started researching it online...then I went into denial. Mine isn't near as bad as some on here, but it does seem to be moving to the right hand as well. I have yet to see a PM, but will probably start PT again in a few weeks after the cast comes off (had unavoidable surgery 5 weeks ago). The only med I'm taking consistently right now is Vicodin, and that's just been since surgery.

I do wish you the best and will keep you in my prayers. I'm still fairly new to this "disease" or "condition" whatever they call it, and really wish it truly did go away...but it seems that's just not gonna happen unless God chooses to intervene. Good luck with the meds and finding a better doctor...let us know how it goes.
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