Quote:
Originally Posted by darkeyes
Long story short (if I ever can,ha!ha!)I was DXed with nodules,while being DXed with hypothryroidism several yrs before that.
It didn't take a rocket scientist to know I was hypothyroid for many years,docs only relied on blood work sooooooo I never got the right treatment,just was told my symptoms were probably due to depression.
Years of struggles,etc. proved I was right they were wrong,wasted my time and mind with mis DX and wrong meds. Grrrrrrrrrrrr!
I'm sure many people have the same story or similar.
It's a common disease,treatable and yet millions are left to suffer,everyday becomes a struggle,no energy,just feeling physically miserable,no wonder depression occurs, duh?
I am bitter right now towards my former and present doc(s) and waiting for followup bloodwork,dose of Synthroid was increased to 50mcgs from 25mcg,with hope the nodules may shrink (after my next ultrasound results will show) so far it's been since August, I feel more tired and constant feeling of PMS,even increased facial skin oiliness like during PMS. I am so sluggish,worse than before.
Has anyone had this happen? Is the other alternative,Armour thyroid med. more efficient.?
I will be calling endicrinologist's office to see what the tests showed.
I had left a message about the med and the ongoing fatigue and no changes in other physical issues, the new doc (I wanted the one referred to in Aug bu she was booked,she has a good long reputation)left me a message saying if tests show "normal", to then take my health problems up with my GP, Grrrrrrrr!
The GP is the one that sent me for the ultrasound,they sent me to the endocrinologist,she further DXes me with Hashimoto's disease,etc. and now she seems she will be blowing me off?
What the heck,she hasn't tried other thyroid meds,didn't do further test, though she said she would do an aspiration of nodules,that the radio dye test isn't as good.
Sorry, this turned out to be too long, but if anyone has had this happen, did your docs try new meds? Did they help?
Thanks in advance,
DE  |
My doctor said I had multiple nodules and he did not believe that I would absorb my thyroid medications because of the number of them and some were calcified.
I had my thyroid taken out and it had so much scarring and was attached and I had a small tumor on my larynx. My specialist only did the TSH and dropped my synthroid and my test ended up at a 33 and after a hospitalization and the ER doctor stating I need to always get all three thyroid tests, I will not get my thyroid test to a normal level for at least six months because I cannot be titered but every six weeks.
My last T4 was 15 and it should be around 5 I was told. SO all along I was telling them the symptoms I was having and my endocrinologist said my test was extremly high and my dosage needed to be lowered. Well, I stayed in the bed for six months because of her, and I do not trust any doctor just because they are a specialist.
I am having my internist following me and THREE DAYS after they increased my dose back up, my blood pressure was normal wherea it had been at stroke levels for over 8 months even with blood pressure medicine.
I reported the specialist to the AMA and my insurance company and found out that this was not the first complaint.
So yes, I have had a similiar experience and this is going to be my first post op year in August and hope eventually to have a normal lab level.
I appreciate this site because of the good advice. BJ