Yes I have had this since1999 and I am sooo over trying to explain and so tired of telling my " story" on how I got this..my stim what it dose etc..
Most of the time ya get that what the heck are you talking about look.
I was so afraid with certain things like going out and speaking to people and eating with people even my family.. all things i have had to work on to over come. If a flare up hits me i just excuse myself and tell them I wil explaine later. I dont think it is fair to worry what others will think of me when that happens because they most times dont worry about me or understand so worring is a waste.
I hope you have a smiley face today and your pain is low and spasms not happening today! Keep hanging in there things will get better.
Keeping you in my thoughts Melina .
PEACE
BMW