Quote:
Originally Posted by glenntaj
--I highly recommend the Liza Jane spreadsheets:
www.lizajane.org
These were put together as comprehensive listing of tests that can be considered for neurological symptoms of various kinds. The spreadhseet format allows one to track results over time and look for patterns--and it also can suggest tests to physicians that they may not otherwise consider.
Can you tell us more about your situation? I'm assuming if they once told you that MS was a possibility they've found some evidence of demyelination on MRI, or abnormal protein in through lumbar puncture, but these can be present in other conditions. What has led to the current diagnosis? |
Sorry I was so brief. Yeah, I have MS. Roughly 35 lesions on last MRI (2003). I was in the Optic Neuritis Treatment Trials in 1988. I went to a neuro last week trying to find out why the hey I'm in so much pain all the time (picture feet completely numb and hurt like the dickens). Some neuro told me in Feb I had PN when I went to the emergency room (nerve pain). I blew it off. The neuro last week confirmed it.
Not a whole bunch of people know I got MS. Family and a few close friends. I haven't even told my wife about the PN thing yet. I've told her about the pain but have been blaming MS the whole time. Obviously, work doesn't know. I'm one of the NASA shuttle flight mission managers (I'm the Johnson Space Center center operations directorate mission manager - you'll see me in the control room on occasion).
About being brief - shuttle lands Saturday morning. I'll have more time after that. We have shuttle un-docking in a few hours.
I still walk normal, unless ya look real close... It's somewhat of a challenge. The pain started a little over a year ago. I've had numerous tests - I'm not diabetic. And I'm aware of the potential for B12 deficiency. And I know a whole bunch of other stuff that I'd rather not know about...
Tom