Thanks for positing this - while I was getting IVIG I was and on SSDI (Medicare) - its getting tougher and tougher to get - depending on your condition (and for those who use it for PN - its usually the most expensive option IF they approve you because the use is for "acquired immune diseases) - the cost is paid out of your Plan D Part of Medicare for home infusions - and the nursing not covered at all - this means that you have to find a home agency that is contracted with your drug plan - and that the will also accept Medicare patients as they do not get reimbursement for the nursing (more of a philanthropic measure towards those on Medicare) - just the med - and your co-pay on the medication - even at "catatropsphic level" since it is considered "specilalty" is still 25 to 35% of cost of med at each infusion - the full cost of the med each time is uaully around $2,400.00 an infusion - thats a large co-pay and many many cannot flat out afford it ... (unlike private insurance where typically when one reaches catasrophic levels, all costs are covered)..... Also, Medicare is restricting much more who may even get the med at all......

Thanks for the above - and hope people respond - even if they dont receive the med themselves!