Heidi,

Nice to meet you. Welcome to the forum, it is a wonderful place.
Lots of ppl to talk with you, answer ?'s.

Lisa, weird, I have those same symptoms without taking neurontin !!
Except that lady didn't have them before taking neurontin.
I had to go off it years ago.

I could never massage the sites where I have RSD. One thing popped up in my mind:
There was no mention of blocks here. What about blocks?
One should have been done before the surgery, except they didn't know you had rsd then. I'd mention stellate ganglion blocks to my doc asap for where you know you have rsd.

One last thing...RSD can affect the whole body, but what is happening to your body is not always RSD.
Otherwise (I think) RSD can cause discomfort in areas you don't have rsd. Maybe it is pain or stress, or messed up autonomic nervous system, but if it is not intolerable burning pain, it might not be rsd, as that is the one sure sign.

Nice to meet you
Hope