SPITLESS! This will happen and soon. IF one has an ACQUIRED immune disease such as GBS or CIDP...your coverage under medicare IS NOT gonna continue! AT age 65....You will be at the mercy of whatever insurance plan you have as a supplemental... and those policies are clearly spelled out and can change at ANY TIME to exclude coverage.
Thing is most 'acquired' and not proven genetically inherited immune issues are not now and won't be covered any time soon by the GUMMINT. Plain and simple.
There has been only ONE clinical trial testing the 'efficacy' of IVIG as a therapy for CIDP...that was recently completed and it is STILL an 'off-label' use for CIDP! Ergo, not approved therapy by FDA? Not approved therapy by Medicare, etc.
Every person who is either entitled to receive this therapy or IS receiveing this treatment should contact EVERY SINGLE SENATE And Federal REPRESENTATIVE to make them aware of how important this is in your life!
You will have to work to keep this good stuff. SO DO IT!
No blithe snippets here please? This is truly serious stuff! Imagine if you can't HAVE IT? Some folks on this and other boards have commented on their problems NOT being able to get IVIG... Remember them! Please! - j

ALKYMST Many thanks for broadcasting this! THIS IS IMPORTANT!