View Single Post
Old 06-12-2008, 08:18 AM
Megan Megan is offline
Member
 
Join Date: Aug 2007
Location: Melbourne, Australia
Posts: 284
15 yr Member
Megan Megan is offline
Member
 
Join Date: Aug 2007
Location: Melbourne, Australia
Posts: 284
15 yr Member
Default ME/CFIDS/CFS/FM and all the other acronyms!

Thankyou Deja Vu.

I am very aware of all the resistance to this term of ME/CFS/CFIDS/FM, however collectively it summarises very well a lot of symptoms, that a lot of people have. History will no doubt judge this diagnosis as primitive once specific causes for it are found ....and I believe this will happen, but for the moment all we have is this umbrella term. Perhaps it will come down to strength in numbers to force researchers to study this more closely, with no more siphoning off funds.

Very interested in the subcategories that you suggest. Any references that you have which discuss this or other pertinent aspects, I would love to read.

For me I know I have not been the same since I had a Mycoplasma Pneumoniae infection at the end of 2005, causing a terrible cough that lasted for ten months and ended with a huge 'asthma' attack in 2006 and nine days in hospital. My fatigue, neurological symptoms and numerous other symptoms did not start 'til 2007.

Two neurologists have been unable to diagnose anything.

A couple of weeks ago I saw a doctor (MD) who has additional training in Nutritional and Environmental Medicine. He ordered a Mycoplasma P. titre and a whole lot of other things - particularly viruses. The tests came back with active Mycoplasma and CMV, with a borderline Legionella titre. This doctor would like to work initially on the toxic overload being expressed as he called it through 'bugs'. So I suppose one step at a time.

I'm sorry to hear that you are having so many neuro symptoms. It's like a never ending saga to diagnosis - and for you more so! I would not call my neuro symptoms severe but they are very specific. Sometimes when I am sitting quietly and feel so sick, I think 'how can there not be an answer to this'? There must be others who are feeling this way and experiencing similar things. Yet even with a clear synopsis of 23 (mostly new in 2007) symptoms nothing 'rings a bell' for the neurologists or my GP. Just want to steer you down the path of being 'nuts' I think!

Hind sight is a wonderful thing and what we are experiencing now will one day be viewed retrospectively..... hopefully the future will provide a diagnosis and treatment!
Megan is offline   Reply With QuoteReply With Quote