Welcome to the forum - I am sooo sorry to hear that you too might be dealing with RSD

I myself have RSD in my left leg and right arm, I have had it for about 15 months now - it started in my left ankle when I was 12 years old after an ankle sprain (I am now 13)

I really hope that you are able to get the help you so desperatley need really soon, I am not aware of any doctors in the area you are in as I live in England but I will have a look and see if I can find any.

The best advice I can give you is to keep your ankle moving (even though it hurts a lot!) Start by doing gentle movements and then gradually build them up. Some of the exercises I do, include trying to move my ankle (this is very hard as I also suffer from dystonia as a result of the RSD), bending my knee etc.

Some people say that Epsom salt baths help there pain and swelling for a little while. I have also read that Grape Seed Extract (GSE) can help with inflammation - I have tried it but it didn't do anything for me, but it might help you - i'm sure you are aware that what works for one RSDer will not work for another unfortunatley!

Also NEVER use ice on a limb that has RSD, you can use hot water but not ice - I used ice before I was diagnosed with RSD and it made my pain worse, it was only when I was diagnosed with RSD that my doctor said that I shouldn't have used ice!!

I have also tried a lot of medications whilst I have had RSD, these include, Lyrica, Gabapentin, Amitriptyline (this caused my vision to go blurry and resulted in a knock to my arm and caused the RSD spread), Tramadol, Diazepam, Baclofen, Propranolol, Kenadrin, Morphine, Guanethidine nerve block (this affected my balance and co-ordination), Paracetamol, Ibuprofen and many more.

I also go to Physical therapy on a weekly basis and I also have some exercises to do at home. I am currently waiting to stat an intense PT program and I will start that in July. I also have Occupational Therapy (OT) and see a Psychologist to try and help me come to terms with RSD. I also see a PM (Pain Management) Doctor who prescribes my medications.

If I can help you in anyway please just let me know - I am more than happy to help you.

Love and best wishes
Alison
xxx