Dear Warren's Mom,
First, let me say how sorry I am for your situation and I think of your post often and pray for your boy.
As far as the weaning off the medication's I truly don't know but what I would do is call one the the best Pain Depts. in the country, and I here it is located at John Hopkins in MD, you can google there web site. I would ask to speak to the head of the the dept. tell whatever person who answers the phone your situation and I bet someone will help you. If for nothing else a new opinion. They may not say anything but may want to even get involved. I thought I saw you live in NC which is not far from MD. A lot of these teaching hospitals want to work with different situations. I have tried this approach with my own situation and if I didn't I might have lost one of my limbs. And if you can't get an answer the first time try two, or three more.
I had a different situation at one time, I am much better now, I worked with one of the best hospitals in the country named #1 for Orthorpedics for many years and I found those doctors to me the most attentive or had very attentive staff than my local doctor.
Please update us on you boy.
Ann
Quote:
Originally Posted by Warren's Mom
My 13-month old had an AVM rupture in late March and suffered multiple strokes. He has endured a major brain surgery to remove the malformation and now has a shunt. After 7 weeks in the hospital, we are currently in a rehab facility for another 7. My confidence in terms of the medical decisions being made is lacking, to say the least. They're trying to rush the weaning process in order to pursue therapies, which is detrimental to my child. Anyone who has weaned their child from Klonopin, valium and/or methadone... please help.
They have reduced his Klonopin by half now, and he has these sudden jerks. We hope they're nothing more than withdrawals from that med. My question is the best way to wean from methadone or valium. How much should be weaned off and how often? I know that different children handle things differently, but any advice pointing us in the right direction would be helpful. Right now, he's on 13mgs of valium/day and 4.8mgs of methadone. Any advice would be helpful.
Thanks!
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