Thanks everyone. Quinine is out...been there done that. Can't take Zanaflex or Baclofen, they don't work for me for the spasticity AT ALL.

I get massage therapy once a week, and b/c I am covered by TriCare, the massage therapy is not. I could probably go somewhere else, but I like my therapist and TriCare would probably send me to some PT center that I wouldn't like...so I am happy where I am and she gives me a good deal.

I am thinking that my B-12 is low again. Haven't had it checked in a while. I am back to once a month shots. I am going to call my PCP on Monday and get a blood draw to see if that's the problem.

I also switched from Sinemet for the spasticity to Soma because of the stomach problems the Sinemet was causing but it did do a good job on the spasticity. Soma doesn't seem to be doing such a good job. Maybe I need to just forego the stomach issues (I can sleep at least) and go back to the Sinemet.

One other thing that I think I maybe leaning towards is that if I do not test positive for the MRTCs at this next blood draw, I may just pull out of the clinical trial...I've technically not been on any meds for over 2 years to treat this MonSter and I am wondering if it is rearing its ugly head and I am heading into the 3 month exacerbation rotation again. Makes sense to me. Had one in December, one in April and this could be another one that I am gearing up for....

Those of you who have known me for a while know that my exacerbation rate was 3-4 a year before I entered this trial. Seems to me that I am back into that routine again.

I am hoping that I test positive this time so I can get on the vaccine for 2 years...

So, here's my plan....blood test for B-12. More water, glug glug glug, ask if I can switch back to Sinemet, which allows me to take rx sleeping pills prn, and see what happens at the appt on the 27th.

It will take approx 2 weeks to get the MRTC blood test results back.

Today I am so tired I can't even see straight, but it is a beautiful day out so I am going to go take pictures of my trees for a marketing brochure. Holly and I are going to walk around the field!

Anyone want to buy some trees?