Originally Posted by Av8rgirl

Another thread about the dreaded spasms and spasticity and I can't sleep. It's 3 something in the morning and I've had about 2 hours of sleep. My legs are killing me and this has been ongoing for about 3 months, maybe a little longer.

I am in a clinical trial so can't just willy nilly change my meds without a hassle with the neuro in charge of the trial. I've asked for a change in meds and am not happy with the lag in response time, the confusion in the office with the new coordinator and frankly the whole issue.

I guess I should back track a little here. I asked for Lyrica for the neuropathic pain and the response was non-responsive. So I am not sure I can take it. So, I am not. Right now the pain is not neuropathic so it's a moot point. I will address that issue next week.

The pain is a combination of spasms and spasticity and I have been asking if the klonopin can be upped. I've been asking for over 2 weeks with no response. Today I finally get a response and it makes no sense but I increased the klonopin from 1 mg to 1.5 mg. I was hoping that it would make a difference right away, but it didn't. I also take Soma. No relief. None.

I know that part of the problem is most likely due to the fact that I have been sick with another cold for the past couple of weeks which makes my symptoms go whacky so I need to just relax and let my system settle down. But, this has been going on since my last exacerbation in April. I got no relief from the IVSM.

I guess it's one of the trials and tribulations of being in a clinical trial and not knowing if you are in the placebo group or not. Right now I am in "limbo" basically between the double blind study and waiting to find out if will be accepted into the extension study for the real drug. I should know by Mid July.

Sounds like it's the week for spasm/spasticity problems. Maybe we should start a club!