Quote:
Originally Posted by SherNY
Hi
Thank you for replying to this question. I am the wife of this man and he is 45 years old. He had many tests since the first incident in May. We are now on our 3rd Neuro dr. Yes he had his carotid arteries checked right away doctor said it was fine also an eccho. He has had the 4 evokes test and nerve tests of the arms and legs. He had a brain mri and it did show lessions. Three weeks ago he went for a spinal tap and we are still waiting results for that and a 2nd brain mri. He was told his b-12 was low and started taking folic acid 1 month ago. Yesterday the doctors office called and told him to start injecting b-12 once a day for 10 days and then once a week for a month. Then he will be tested. He did his first b-12 injection today and he is complaining of joint pain especially in his knees. I hope this post makes sense. I have so many things to say and I am not good at putting it down on paper.
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Hi! The only thing I can think of that hadn't seen mentioned (although I read this very quickly) that might have such symptoms is Lyme Disease, and that testing is often false negative.
BUT...the low B12 alone could indeed be the cause of all these symptoms. It can co-exist with other things, like Celiac Disease and Lyme Disease (these can both cause lesions, too), but it is very possible this could all be related to
just B12 deficiency. Eventually, there should be some other testing to determine WHY the B12 deficiency. You can check out the B12 deficiency pages in The Gluten File (very bottom of right bar)...it includes a link to Rose's B12 information. I'd also consider taking the oral methylcobalamin daily, particularly when the shots are scheduled down to once a month. Most people do just fine with only oral B12 (high dose, 1000-2000mcg daily), but there isn't anything wrong with the shots. Once his level is up and high, he can ask about maintaining it with oral methylcobalamin.
I agree with whoever said the last event sounded like a possible seizure (sounds similar to my what my daughter's seizures were like), too, but even seizures can be a symptom of B12 deficiency. There could be multiple factors here, but if the major problem is the B12 chances are good you will see some signs of improvement within the first three months (or even sooner), although sometimes it takes longer depending on severity/duration.
Good luck, and I hope you'll keep posting here. Lots of good information here
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Cara