I just posted this on the other thread, but I'll put it over here, too.

Hugs, spasms stink!

When I get the big ones in my legs it is always at night. The bad ones last anywhere from 10-15-20 minutes long. I also cannot move my leg at all because it makes them start again.

They are better now as I take Klonopin 0.5 mg and 40 mg of Baclofen before bedtime along with my mix of other meds.

I try to stretch a little during the day if I feel tight. It's impossible to do so for me once they start. And it absolutely messes with my sleep if they happen at night.

I found that putting heat on the back of my legs when I was lying down on the bed before sleeping seemed to help a bit.

I have the myoclonic jerks in my legs but I am getting used to them during the day. I can take the Baclofen up to 5 times a day but I try not to use it unless I really have to do so during the day. I want that big bang of a punch for night time so I can sleep.

I was having terrible sleep issues for about 5 weeks and part of it was due to the horrendous spasms. I can now mostly sleep through the night.

Good luck,
Weebs37

PS: Don't you hate it when your docs are basically non-responsive? I know with you being in the trial and all it makes med changes more difficult but being in pain and not sleeping is a big thing to the person experiencing it. I wish some docs would remember that.

We may only be one patient to them out of hundreds but we're the one we're concerned about! Best to you with the cold and everything.