Quote:
Originally Posted by Av8rgirl
I was dx'd in 2001 so I am wondering if that stat will hold true. I always seem to be in the 1% group...a shift in this stat would be seem reasonable given the new medication as well as more reliable diagnostic tools. Just a thought.
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Yes, new diagnostic tools means many of us are probably dx a lot quicker then we used to be. Good point ... and that alone could shift the length of time till SPMS.
As far as the DMT's (and/or other alternative treatments, like LDN maybe), I would think they might affect the amount of time before SPMS, at least FOR THOSE THEY WORK FOR. The trick is to find one that works for us as individuals though.
I know I was 'borderline' SPMS after 14yrs, but then I started on LDN and they left me categorized at RRMS. I suspect I may either be headed into SPMS now, or maybe I just left that infection too long last year and caused some "permanent" damage (that makes it appear/feel as though I have advanced with the disease). I'm still having relapses, but most people with SPMS do in the beginning of that phase. My EDSS has not changed though, so at least that's good news.
I'm 17+ - 29 yrs (if I include the undx time, with symptoms) into this journey.
Time will tell.
Cherie
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