Hi Kelly - How long has this been going on? If you feel it is a new symptom and possibly may be entering another exacerbation, definitely call the dr. The sooner the better.

I haven't experienced what you described so I have nothing to share. I have had the twitching, jerking, vision loss - part of it permanent, blurry vision, etc. I have had muscle spasms that I was able to see happening in the mirror. But I have never had my face swell.

Sending you lots of cyber's and hope you feel better soon. Let us know how you are doing.