Thread: Tysabri Information & Check In
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Old 06-16-2008, 11:41 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by hotfoot View Post
I was supposed to have another infusion today, but after several painful pokes, lots of water, and hours of missed work, the nurse told me to go home and she could reschedule me later.

I have left msgs with my neuro and cm.
Isn't there more than one nurse available? Is the infusion center connected to the hospital?

I've actually asked for another nurse and THEN a phlebotomist when two in a row couldn't get the stick...and the phlebotomist came in and slammed it home on the first try! ( I go to the oncology clinic at the hospital for my infusions, so there's ALWAYS someone else available.)

Sorry to hear it didn't go well for you. I hope they get you back in ASAP.

I'd be talking to the infusion center director too, to make sure that it is understood that this is a 28 day dosing schedule and that when it is missed, it sets YOU back.

Please let us know how it goes!
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diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
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