View Single Post
Old 06-17-2008, 03:38 PM
Scots Kat Scots Kat is offline
Member
 
Join Date: Feb 2008
Posts: 175
15 yr Member
Scots Kat Scots Kat is offline
Member
 
Join Date: Feb 2008
Posts: 175
15 yr Member
Default

Hi and welcome to the forum!
I too have retired my heels - although to be honest I was always more of a sneaker person (I wore sneakers at my prom way before MG reared it's ugly head and had special white sneakers with pink laces at my wedding - but my Mom did make me wear "proper shoes" for the church service). I haven't noticed a dragging leg per se, but definitely don't raise my leg as high when I'm tired and walking which often causes me to trip over the slightest of inclines. This is dangerous because I don't really have the strength in my legs to catch myself when I start to fall.

I can really empathise with the loss of self esteem. This has been my hardest year so far with MG. No crisis (thank God) - but near enough. I too am a religious person but I really was MAD at God this year at several points. Around christmas was my lowest point and for the first time in my life I actually thought the world would be better off without me. I have NEVER felt so low and useless - definitely depressed. Thankfully I worked through it and now things are really on the right track, so try to stay positive and look forward! In December I had to crawl to get on a bus because I couldn't step up and needed my husband to dress me - now I'm back to doing everything independantly. I still carry my cane too, but haven't needed it in weeks!

I recently had to go for a job interview and I was SO nervous because of my wonky smile and terrible eye (my ptosis is one of my worst symptoms). Eye contact is so important and I just felt I couldn't maintain it! Anyways, in the end the interview itself was good (I didn't get the job though - countdown to unemployment 8 days) but I still felt my confidence took a blow. I was so worried about what I looked like I couldn't focus on the questions.

Anyways, sorry I'm rambling on about myself. I guess I just wanted you to know that even though right now things seem bad there is light out there!! I am so grateful for every one of my good days now! All that's left is to get rid of some of my steriod weight gain.. granted I'd rather be chubby and able to walk up a flight of stairs! I just wish I didn't look like an oompa loompa! Hee hee.

Take care of yourself and Be Happy! A wonky smile is better than none at all!
~Kathy
Scots Kat is offline   Reply With QuoteReply With Quote