Dear GJmom -

I can't imagine how frightening this must have been, let alone that you've had the presence of mind to be on the computer. A number of threads have been put up over the last year on dystonia. Two of the better ones were posted by Sandra (Sandel) and open links to compilations of various drug therapies:

Dystonia medication facts.. resource guide @ http://neurotalk.psychcentral.com/sh...light=dystonia

and

NEW BREAKTHROUGH TREATMENT OPTIONS FOR PERSISTENT PAIN (dystonia etc) @ http://neurotalk.psychcentral.com/sh...light=dystonia

Of the drugs mentioned, I have never used any of the more interesting rheumatological agents. I have, however, used Baclofen with some success - although at the cost of short term memory. Klonopin is great for anxiety but did nothing for my spasms and while Flexeril was useless for me, I know others who swear by it. As with so many things, to each their own.

You should really be seen by a good neurologist. All the best.

Mike

ps Parafin wax is the old fashioned wax that my grandmother used to seal jelly. It's now used in a machine that heats it to variable tempratures in the 140 - 160 degree range. You quickly dip the affected limb in and out 5 times until a soft warming glove/boot/etc. forms, which you then keep on for a few minutes. Many people find it quite relaxing as did I, until one day I developed an incredible sensitivity to the heat, and that was the last of my parafin experience.