thanks for reply...
and sharing what's going on w/ you.... wish I could offer something more--prayers & good thoughts for BEST w/ all you're dealing with....

as for me, trying to hang in.....

yesterday woke w/ killer migraine-- resorted to ER, treatmt w/ IM Toradol--
which also helped some severe pains in other parts of body.
today migraine hangover; still, or always have that crazy burning --back of head/neck and sensitivity---hurts to put head on pillow, etc.
Botox (one treatmt) did help . I don't understand Medicare denying after initial approval, esp when improvement reported. I don't know if DR appealing
Last conversation was told he's more concerned w/ IVIG
Why can't they appeal both treatmts rather than prioritize one? actually I'd rather Botox get priority, w/ these migraines headaches so debilitaing. but....
Neuromuscular specialist that i have upcoming appt with, per info at website,
does Botox too. Hope this works --so many 'bad' experiences w/ DRs.


Yesterday my head was SO Hot--melted ice packs; today not so bad but do wonder why my head's so hot so often ; it feels like fever that drains energy --like flu .
Occassionally have low grade but most often temp is below normal.
its like my body's thermostat control broke. even in summer feet, hands cold.


re: your questions: Muscle biopsy was done--2 mths ago. Very painful & still is. that surgery created new nerve pains & SX--that look like RSD.

I haven't seen cardiologist for years; my sister [nurse] has been urging me to go to GI specialist, which I've put off. but seems will need to make appt.
I've been trying to not get involved w/ too many DRs at once and also have been "blaming" many SX , on affects of TBI's
I did go back to brain injury specialist (physiatrist rehab DR) He was concerned w/ fractures from falls. Thankfully my neck wasn't but knee is.
will be seeing Orthopedic Dr this week.

will update, if interested.

again thanks for reply & support. Means much to me, esp now.