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Old 06-18-2008, 12:23 PM
ZombiePippa ZombiePippa is offline
Junior Member
 
Join Date: May 2008
Posts: 10
15 yr Member
ZombiePippa ZombiePippa is offline
Junior Member
 
Join Date: May 2008
Posts: 10
15 yr Member
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Thanks for the story, Koala! Bewildering specialists is fun

Actually, I've gotten a whole range of opinions from each side of my family. When I had my first episode of ON, my mom looked it up, and the first things that showed up were about MS. A friend at work told her that it actually might be retinal migraines, so now she's positive that it's nothing worse than that.

My fiance's side of the family are all worried it is MS. When his mom first described my ON to a few other people in the family, three of them sort of looked shocked and told her that I need to be tested for MS. His mom is a nurse and said she can't really find any other explanation for what has been going on.

I'm sort of in between. I've realized there has been a possibility that it is MS from the beginning, but I also know it could be something that isn't serious at all. The only thing I have become fed up with is that (even though no one's said it) I feel like maybe they think it's all in my head, because of the lack of communication between the eye specialist and the neuro. My visual field test and color vision tests showed that I had some damage, but since it's not permanent, it tends to clear up like it was never there within weeks, or even days. Since no one can actually see any physical evidence of what I'm seeing, or the things I forget constantly, what is there to show them that this is real, other than my telling them?

I think that's why I'm worried about the results of the VER. Will it show the damage from my past ON episodes, or since it's cleared up a lot, show nothing? I really don't understand how those work.

I'm really frusterated and just want an answer right now, no matter what that answer might be.
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