Thread: Syringomyelia
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Old 06-18-2008, 11:43 PM
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AzSyringoChiari AzSyringoChiari is offline
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AzSyringoChiari AzSyringoChiari is offline
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Join Date: Jun 2008
Location: Arizona
Posts: 21
15 yr Member
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Quote:
Originally Posted by Stetson View Post
I have just been told I have this disorder, to tell you the truth I'm afraid.I have 2 young kids and a wonderful wife that I'm afraid of putting a burden on them. What can I do?

Stetson,
I also have syringomyelia and understand your feelings! The best advice I can pass to you from my personal experience is first, Please educate yourself on this diease! Go to asap.org and other great informational sites. Remember you know your body and how you feel. Do not tolerate any Doctor that treats you without respect & understanding.

Take a deep breath.....you will never be a burden to the ones who love you! I would be happy to talk with you further if you would like. Send me a email.
Blessings!
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