Stetson,
I also have syringomyelia and understand your feelings! The best advice I can pass to you from my personal experience is first, Please educate yourself on this diease! Go to asap.org and other great informational sites. Remember you know your body and how you feel. Do not tolerate any Doctor that treats you without respect & understanding.

Take a deep breath.....you will never be a burden to the ones who love you! I would be happy to talk with you further if you would like. Send me a email.
Blessings!