Quote:
Originally Posted by KrisC
Well, she is still doing testing. I have a skin biopsy next week and the autonomic testing the week after that. I'm still taking the multi and the omega and flax. I'm concerned about not taking calcium and vit D, so I ask about that. Maybe she's concerned about toxicity?
My family and friends are all like wow you must be so relieved. They have no idea. I don't know what I'm dealing with yet. I am in pain. Yesterday my inner ankles burned all day, and my forearm, although less so. I am looking at medication for the rest of my life, medicine that probably won't even take the pain away.
I'm a researcher/writer. I've been doing a lot of research and it's just been more upseting. No hope for cure. How bad of a condition do I really have? Real Age.com, Dr. Weil, they say just meds. Even my Nutritional Healing book which has everything, NOTHING for neuropathy. It's like I feel like I'm screwed.
I'm sorry to whine to you all. Really, I am. Thanks for listening. I'm not usually a whiner.
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Whine?? WHINE? I don't consider you to be whining at all. Not a bit. And even if you were whining you're entitled. At least for a while and every once in a while thereafter.
I would ask your doc why no supplements, etc. Is there a specific reason? Or just out of touch and date info? Check out the stickies here at the very top of the forum. The very first one, "Neuropathy does improve" has much important info.
I understand exactly how that feels. I still have days where it gets me really down. "I'm going to have this for the rest of my life". A cure? Maybe...again, read the first stickies.
And you found this board. That was the miracle for me! Late one night, or very early morning, again I couldn't sleep for the pain. Sitting at the computer crying trying to find some answers and I stumbled on this message board. It's been a lifesaver, literally. Now my pain is decreased about 90% overall since finding this 'place'.
For pain relief ask about Lyrica...and also Tramadol if the pain is that bad for you. Some people do well with the opiate type pain relievers. They never did much for my PN pain. Pain is very subjective for all of us. You'll discover that most of us take some combination of meds for the pain. I have RLS with PN. I was taking Mirapex until just recently (long story why I took a break from it and related directly to my smoking quit). And my best friend, Tramadol. Tramadol mutes the PN so wonderfully and did work on some of the RLS symptoms as well. Oh! Sorry, RLS = Restless Leg Syndrome. The Mirapex was truly an eye-opener for telling the difference between what was PN pain and what was RLS.
And please don't be ashamed or worried to ask your doctor for adequate pain relief if that's what you need. You have the *right* to adequate pain control. And if that doc won't prescribe it you need to find a doc that's better versed in pain management and not paranoid about actually prescribing the pain killers.
Welcome to the board!
