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Old 06-20-2008, 07:23 PM
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
LizaJane LizaJane is offline
Member
LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
Default Good advice

You've gotten a lot of good advice already, and you seem up to the task of taking some control over the future of your diagnostic workup and whatever treatment.

Please make sure you get a complete workup for neuropathy, although, I have to say, THIS DOES NOT SOUND TYPICAL.
It really sounds a bit odd for neuropathy to have it start at an ankle, and sort of settle around it, and then go to the arms.

It could be an inflammatory neuropathy, so you should get your neuro to do a full workup for it.

I've just discovered that lizajane.org is still down (we were having a server problem that I thought was solved), but on that site I've listed all the tests one needs for neuropathy, with a checklist to go through with your doctor.

Have you had your iron levels checked as well as B12 and folate?
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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