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Junior Member
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Join Date: Apr 2008
Posts: 17
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Junior Member
Join Date: Apr 2008
Posts: 17
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Welcome Pemac
Quote:
Originally Posted by pemac
Thank you. I kinda figured it was not cureable. I just want to be off the meds. I will check out that forum. I do have a lot of mixed feelings about it and some anger towards it since I have had so many knee surgeries, I feel like why can't I get a break. But I know I am not alone with this and I know it could be a lot worse. I have an aunt with a form of MS and she said she suffers mentally and is not in pain. But with hers she cannot strengthen any of her muscles. She has been supportive talking to me telling me how to take it. I am glad I came across this site. I know it will help to talk to people who are going through it. Since my husband does not really understand. I try to talk to him and vent but he is your typical male who doesn't listen half the time or just pretends to be. Anyway thanks for the responses and I will be checking into that forum.
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Hi Pemac and Welcome to the forum. I haven't been a member at this one for very long but I have found it very informative so far. Everyone here has been very friendly and forthcoming with anything they can help with.
I have had RSD for almost 5yrs now. Started in right hand (surgery) and has now spread to both hands, arms both legs,hips,neck,spine. Pretty much all over. Anyway, I am sorry to hear you have been diagnosed with the monster, but early diagnosis is good. Don't worry about not having ALL the symptoms; nobody does usually. We are all different and this is a very unusual condition.
I do know people from other forums that have started their families with RSD. So it can be done! There are many personal websites with their own stories and then dozens of really good support groups like this one. So information is not lacking.
Only money for research for a cure and getting the public aware of the condition. That's what mine and a lot of RSD sufferers do with our websites. Try to get public and medical awareness of just RSD is. I know when I was diagnosed I had never heard of it! I bet you were the same way. And friends and families really don't understand. It's one of those, "you don't look sick". I don't know if you have experienced that yet, but be prepared....
There is so much I could tell you but I better stop for now. Again, welcome and I'm sure I'll see you around.
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