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Old 06-22-2008, 12:26 AM
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Location: Southern California
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RedPenguins RedPenguins is offline
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Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
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Natalie -

I remember having all of my nerves acting up because I had to wait soooo long for my first appointment. Waiting is always the worst!

Anyhow, the infusion was cake - no problems. I was actually shocked. I had no reactions and actually questioned if they just gave me a saline drip and no Ty. However, I was pretty weak and beat up for a few days after the Tysabri infusion. After that, it was okay.

As for infections and colds, I had no problems - and I work with children (often sniveling and snotty and booger-y ones). LOL. The only thing I noticed was that I had one pretty bad UTI and a more mild one - both bladder/kidney infections (so no burning or anything like that - mostly pain in my kidneys). And although I've never had UTIs as an adult, I can not say if it was the Ty or the MS that caused it.

Other than that, like I said, no problems. Even the feeling beat-up and weak and the UTIs still made Ty worth it to me. Some others have had bad reactions during the infusion or after - but just like with all the other meds - everyone reacts differently. I guess we all just hope that we will respond well to whatever med we choose to be on!

I wish you the best of luck - and hang in there - I know how anxious, nutty, angry, frustrated, annoyed, and SCARED I was while having to wait. But hopefully when the three weeks are up - the infusion will have happened and been a breeze!

~Keri
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Natalie8 (06-22-2008), Victor H (06-23-2008)